What is the purpose of the research?
It is increasingly becoming the norm to share data from clinical research studies. We seek to understand if and how shared datasets are reused, what challenges exist in accessing and reusing the data and what impact data reuse has had on scientific research and general public health.
What are the possible benefits of this research?
Data from this study will help to define what measures should be implemented to increase effective secondary data use. We anticipate that increased reuse of data will result in improved quality and transparency in science, improved public health and patient outcomes, and better return on investment in research.
Study team and information
The study is led by researchers from University of Oxford and Mahidol Oxford Tropical Medicine Research Unit with collaborators in UK, Kenya and Vietnam. The study has been approved by the Oxford Tropical Research Ethics Committee (OxTREC).
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The findings from this research project will be disseminated through research reports, publications/articles and presentations. We are processing your data for these purposes only because you have given us your consent to do so, by ticking the appropriate box. Your responses will be anonymous, as the survey does not collect your name, email address or IP address. Because of this, we will not be able to withdraw your responses retrospectively, after you have submitted them. If you exit the survey before submitting your responses, your data will not be stored.
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If you wish to contact someone independent of the study team, you can email the Oxford Tropical Research Ethics Committee (OxTREC) by email: firstname.lastname@example.org.