This voluntary survey is part of a study led by researchers from University of Oxford to understand if and how medical researchers use data collected by others. Even if you do not use data collected by others, your insights are useful for this study. Your responses are anonymous.

The survey takes 3 - 7 minutes to complete.

About the study

What is the purpose of the research?

It is increasingly becoming the norm to share data from clinical research studies. We seek to understand if and how shared datasets are reused, what challenges exist in accessing and reusing the data and what impact data reuse has had on scientific research and general public health.

 

What are the possible benefits of this research?

Data from this study will help to define what measures should be implemented to increase effective secondary data use. We anticipate that increased reuse of data will result in improved quality and transparency in science, improved public health and patient outcomes, and better return on investment in research.

 

Study team and information

The study is led by researchers from University of Oxford and Mahidol Oxford Tropical Medicine Research Unit with collaborators in UK, Kenya and Vietnam. The study has been approved by the Oxford Tropical Research Ethics Committee (OxTREC). 

 

Data protection

In the course of completing the survey, you will have provided information about yourself (‘personal data’). Data protection regulation requires that we state the legal basis for processing information about you.  In the case of research, this is ‘a task in the public interest.’ The University of Oxford is the data controller and is responsible for looking after your information and using it in accordance with the General Data Protection Regulation and associated data protection legislation. Your data will be held securely in accordance with the University’s policies and procedures. Further information is available on the University’s Information Security website. Information on your rights in relation to your personal data are explained here

 

 The findings from this research project will be disseminated through research reports, publications/articles and presentations. We are processing your data for these purposes only because you have given us your consent to do so, by ticking the appropriate box. Your responses will be anonymous, as the survey does not collect your name, email address or IP address. Because of this, we will not be able to withdraw your responses retrospectively, after you have submitted them. If you exit the survey before submitting your responses, your data will not be stored.

 

Contact

If you wish to raise any queries or concerns about our use of your data, please contact us at reuse@tropmedres.ac or on Telephone  +66 02 203 6333 Ext 8302

If you wish to contact someone independent of the study team, you can email the Oxford Tropical Research Ethics Committee (OxTREC) by email: oxtrec@admin.ox.ac.uk.