- Do you or a member of your family have psoriatic arthritis?
- Does a friend or someone you know or work with have psoriatic arthritis?
- Are you a healthcare professional who cares for people with psoriatic arthritis?
If yes, then this is a unique opportunity for you to have your say in psoriatic arthritis research! We are asking for your help to identify the top 10 unanswered questions you want psoriatic arthritis research to address.
The British Psoriatic Arthritis Consortium are running this priority setting partnership, in association with the James Lind Alliance to help to identify the key questions that patients, their family, carers and clinicians have about psoriatic arthritis.
It should take no more than 5 minutes to fill in.
Please read this information so you know what the survey is about, then click ‘next’ at the bottom of the page to start the survey.
All information on this survey is anonymous (no one else will know your personal answers).
What do we mean by unanswered questions?
We are looking for any questions you might have about psoriatic arthritis and its treatments that, if addressed by research, could make a real difference to people with psoriatic arthritis.
Please note that for the purposes of this survey we are only collecting questions on adults with psoriatic arthritis or those that have previously had juvenile idiopathic arthritis with the psoriatic arthritis sub-type. This is because there is already a priority setting partnership running for other types of juvenile idiopathic arthritis and they have recently published a Top Ten (available at http://www.jla.nihr.ac.uk/priority-setting-partnerships/Juvenile-idiopathic-arthritis/top-10.htm).
We will compare the questions we receive with existing published research and all unanswered questions will be taken forward. More detail about this process is in the information sheet provided or on our website:
The questions will help guide psoriatic arthritis research and ensure that psoriatic arthritis researchers and those who fund research know about the most urgent needs of people living with psoriatic arthritis, their families and carers and those treating people with psoriatic arthritis.
We are also asking some questions about you. It would be helpful for us to know a bit about you, so that we can:
- make sure different people from across the UK are giving us their views
- understand the questions being asked by different groups.
We are interested in the questions that you think should be answered by research.
Please note, this is a UK funded exercise, your questions may only inform the research agenda in the UK.