Evaluating the Dissemination and Use of Communication Guides by Healthcare Professionals

General Information

Our research group, led by Professor Alan Stein from the University of Oxford, (Department of Psychiatry) recently created and disseminated a platform of resources www.psych.ox.ac.uk/research/covid_comms_support including two step-by-step infographic guides and animations to support Healthcare Professionals (HCPs) and families:

1. for staff to support them contacting relatives by telephone to tell them that their loved one had died of COVID-19

2. for families to help tell any children in the family that their loved one has died.

We appreciate your interest in participating in this online survey. You have been invited to participate as you are a healthcare professional who may work with adult in-patients affected by the COVID-19 pandemic. Please read through this information before agreeing to participate by ticking the ‘yes’ box below.

You will be given some questions to read and then asked your thoughts and experiences of using the resources; it should take between 5-15 minutes to complete. Your answers will be used to understand how the guides have been used and ensure that HCP’s needs and preferences are used to inform future content development. This project has been funded by the COVID-19 Research Response Fund, Medical Sciences Division, University of Oxford.

Do I have to take part?

Please note that your participation is voluntary. You may withdraw at any point during the survey for any reason, before submitting your answers, by closing your browser.

How will your data be used?

Your answers will be completely anonymous, and your IP address will not be stored.

Your data will be stored in a password-protected file and may be used in academic publications. All questions are optional, and we have included a ‘Prefer not to say’ option for each set of questions if you prefer not to answer a particular question. You cannot withdraw your data once you have clicked ‘submit’ as we are unable to link the data back to specific participants. Research data will be stored for a minimum of three years after publication or public release.

If you are happy to be contacted about our group’s future research, you will be invited to submit your email address via a separate survey page and thus your answers will not, and cannot, be linked to your email address.

Who will have access to your data?

JISC Online Surveys (hosted and supported by the University of Oxford) is the data controller with respect to your personal data and, as such, will determine how your personal data is used. Please see their privacy notice here https://www.onlinesurveys.ac.uk/privacy-policy/. JISC Online Surveys will share only fully anonymised data with the University of Oxford, for the purposes of research.

Your anonymised survey responses may be shared with study collaborators within the University of Oxford in order to help with data analyses such as statistical analysis.

Responsible members of the University of Oxford, funders may be given access to data for monitoring and/or audit of the study to ensure we are complying with guidelines, or as otherwise required by law.

The principal researcher of this study is Professor Alan Stein, who is attached to the Department of Psychiatry at the University of Oxford. This project has been reviewed by, and received ethics clearance through, the University of Oxford Central University Research Ethics Committee Ref: R70526/RE001.

What if there is a problem?

If you have a concern about any aspect of this project, please email Elizabeth Rapa on elizabeth.rapa@psych.ox.ac.uk who will do her best to answer your query. Elizabeth should acknowledge your concern within 10 working days and give you an indication of how the researchers intend to deal with it. If you remain unhappy or wish to make a formal complaint, please contact the Chair of the Medical Sciences Interdivisional Research Ethics Committee at the University of Oxford who will seek to resolve the matter as soon as possible: Email: ethics@medsci.ox.ac.uk; Address: Research Services, University of Oxford, Wellington Square, Oxford OX1 2JD.

Please note that you may only participate in this survey if you are 18 years of age or over. Required
If you have read the information above, are a healthcare professional working with families affected by the COVID-19 pandemic, and agree to participate with the understanding that the data (including any personal data) you submit will be processed accordingly, please check the relevant box below to get started. Required