Calling all people who live and work with advanced heart failure

What is heart failure?

Heart failure doesn't mean your heart has stopped working – it just needs some support to help it work better. It can happen at any age, but is most common in older people. Heart failure means the heart is unable to pump blood around the body well enough, which can lead to symptoms of breathlessness, palpitations, ankle swelling and fatigue.

We want to find out what research is needed for people with ‘advanced’ heart failure. For this project our definition is a person with a known diagnosis of heart failure who has symptoms, such as breathlessness, which impact on what they are able to do, require them to take lots of medications or go into hospital.


This is an opportunity for you to help  

If you are a person with heart failure, or look after someone with heart failure, we would like to hear from you.


What are we doing?

We are asking people who are affected by advanced heart failure, their families, friends and health and social care professionals who look after heart failure patients to help us identify the top ten questions that they want answered by heart failure research.  This will help guide heart failure research and make sure that researchers focus on the needs of people living with the condition.


What do I have to do?

Tell us about what questions you have about advanced heart failure you would like to see answered by research. You don’t need to answer all the sections. 

Your questions in your own words are what we are looking for. The most important thing is to draw on your own experience and what is important to you.


This survey will take you approximately 5 minutes to complete.

Who are we?

We are a group of patients, carers, care professionals and researchers who want to find out what research is needed to help people with heart failure living in the community. This work is supported by an organisation called the James Lind Alliance.


Please contact us via the details below if you would like a copy of this survey in a different language or would like an easy read version (paper or online available).


Telephone: 0117 9287257


Which describes you best? Required